Duchenne is caused by a mutation on the X chromosome, which results in partial or complete inability to produce the…
duchenne muscular dystrophy
Devin and I had the great privilege of attending The Carousel of Possible Dreams as guests of CureDuchenne. CureDuchenne was…
University of Florida April 23-25, 2017 Devin enrolled in the Imaging DMD study which has been designed to compare the muscles…
I don’t always do a great job at recognizing all the amazing things that happen in life, especially day-to-day as…
We were honored to be the host family for the CureDuchenne Cares family workshop held in Milwaukee, WI. Our family had…
if I CAN if it’s unacceptable, I can confront it. if it’s unbearable, I can endure it. if it’s unbeatable,…
“The Day” On September 19, 2016, the US Food and Drug Administration (FDA) approved the first ever treatment for Duchenne…
This is a selection of some of the videos we’ve made or have been included in.
We put together a video to share the 26 most impactful moments in our life, related to muscular dystrophy, over…