Josh

Cause of Duchenne Muscular Dystrophy

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Duchenne is caused by a mutation on the X chromosome, which results in partial or complete inability to produce the muscle protein, dystrophin. Duchenne muscular dystrophy is inherited in an X-linked recessive pattern. Males have only one copy of the X chromosome, which they receive from their mother. If their X chromosome has a DMD … Read more

Running the Rocky Stairs

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Devin and I were able to spend a couple hours exploring Philadelphia during a recent business trip. There were storms approaching the area and our time was limited so we had to choose our destinations wisely. We decided to go to the place that held the number one (and only) spot on Devin’s list. This video is the result of that adventure.

2018 Chicago Spring Half Marathon

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[vc_row][vc_column][vc_column_text]Devin entered the 2018 Chicago Spring Half Marathon with MDA Team Momentum. It was a super cold day for late May with a temperature of only 45 degrees, which was made even colder by the 15 mile per hour winds blowing in off Lake Michigan. [/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][gem_gallery gallery_gallery=”24412″ gallery_type=”grid” gaps_size=”42″ metro_max_row_height=”380″][/vc_column][/vc_row]

2017 MDA Summer Camp

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It turns out, 2017 was the last year MDA Summer Camp would be held at Pilgrim Center in Green Lake, WI. Campers from the Green Bay office will now attend the same camp as the campers from the Milwaukee office. They’ve been going to Wonderland Camp, just north of the Illinois border, which is where … Read more

The Carousel of Possible Dreams

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Devin and I had the great privilege of attending The Carousel of Possible Dreams as guests of CureDuchenne. CureDuchenne was one of the four charities to benefit from this year’s Chicago area event, organized by the Festival of Children Foundation and held at the beautiful Sanfilippo Estate in Barrington, IL. We were very fortunate to spend … Read more

ImagingDMD

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University of Florida April 23-25, 2017 Devin enrolled in the Imaging DMD study which has been designed to compare the muscles of boys with duchenne to muscles of boys without DMD over a period of 5 years. They observe and document the amount of muscle damage shown in the images from the MRI along with data from … Read more

Devin and Reagan Create Artwork for Auction

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MDA WI and Upper MI Office Milwaukee, WI March 10, 2017 Devin and Reagan joined forces with Mat Hintz of Hintz Studios to create a beautiful piece of art featuring a Harley-Davidson motorcycle. The artwork will be auctioned off at the Muscular Dystrophy Association’s annual Black-N-Blue Ball held in Milwaukee, WI. The Black-n-Blue Ball is … Read more