2018 Chicago Spring Half Marathon

2015 MDA Summer Camp  

“The Day” On September 19, 2016, the US Food and Drug Administration (FDA) approved the first ever treatment for Duchenne…

Another unforgettable week at MDA Summer Camp.

if I CAN if it’s unacceptable, I can confront it. if it’s unbearable, I can endure it. if it’s unbeatable,…

Duchenne is caused by a mutation on the X chromosome, which results in partial or complete inability to produce the…

MDA WI and Upper MI Office Milwaukee, WI March 10, 2017 Devin and Reagan joined forces with Mat Hintz of…

Devin and I had the great privilege of attending The Carousel of Possible Dreams as guests of CureDuchenne. CureDuchenne was…

We were honored to be the host family for the CureDuchenne Cares family workshop held in Milwaukee, WI. Our family had…

It turns out, 2017 was the last year MDA Summer Camp would be held at Pilgrim Center in Green Lake,…

Dear Friends, I am writing to share some wonderful news. My son Devin is walking, running, and can even ride…

I just completed my first official race for Team Momentum! I finished a 10k at the Brewers Mini!  We had…

This is a selection of some of the videos we’ve made or have been included in.

I don’t always do a great job at recognizing all the amazing things that happen in life, especially day-to-day as…

2014 MDA Summer Camp

University of Florida April 23-25, 2017 Devin enrolled in the Imaging DMD study which has been designed to compare the muscles…